The struggle with leukemia: A story from Kashmir


SRINAGAR: On July 16 last year, Mohammad Bilal Hakeem, a 40-year-elderly person in Indian-regulated Kashmir, was upset over the weakened state of his six-year-old child.

A curiously high fever made the dad speculate his child had gotten COVID-19, however, this before long took a turn for a lot “more awful.”

On June 29, Mustaqeem was shuddering with a high fever, yet it went on for two days prior to returning in July, this time with greater seriousness.

Clinical trials uncovered Mustaqeem was experiencing intense lymphoblastic leukemia (ALL), a kind of blood malignant growth.

This kind of malignant growth can advance rapidly and necessities critical consideration, according to clinical specialists.

Leukemia week was seen between Nov. 2 to Nov. 8, Anadolu Agency returned to the instance of Mustaqeem and his battle with the infection.

“It was so surprising and appalling for our family to know this news,” Bilal, the dad, said.


After Mustaqeem was determined to have the illness, the entire family got under mental pressure.

“By then, we felt it was the end as the news was so upsetting. I was unable to rest for quite a long time together pondering how might my child respond to the patterns of treatment,” Bilal told Anadolu Agency.

The bothered dad before long took his child outside Kashmir for treatment however is as yet ignorant regarding the future state of his child.

“The treatment is going, yet I have left the entirety of my expectations and petitions with the Almighty,” Bilal said.

A review directed last year among 180 pediatric malignant growth patients who had visited the tertiary emergency clinic of Kashmir from 2015 to 2019 showed that there is a shot at backsliding among 20 to 30 percent of patients after essential chemotherapy enlistment.

“Intense Lymphoblastic Leukemia is the most widely recognized danger among kids, and it can demonstrate deadly if ideal therapy isn’t given,” Dr. Saqib Ahmad, a clinical oncologist, told Anadolu Agency.

Examination recommends that almost 77,000 youngsters and teens (0-19 years) are determined to have malignant growth consistently in India.

An Indian Council of Medical Research (ICMR) report delivered for the current year said that 7.9 percent of all disease cases in India somewhere in the range of 2012 and 2019 were found in youngsters more youthful than 14 years old.

Trying to become a space explorer

At 2 years old, Mustaqeem was particularly interested in the pictures of planets and stars.

“He generally had a comparing towards these things. At the point when he turned four years of age, he let me know that he needed to turn into a space explorer,” Bilal said.

He added that he generally requested me to bring pictures from these planetary bodies from writing material shops and pose inquiries.

However Mustaqeem is going through the treatment cycles, his dad actually carries pictures of these planetary bodies to perk him up.

“I ensure he doesn’t feel terrible or seek discouraged with the long treatment time frame,” adding that occasionally, he asks inquiries regarding for what valid reason we are in the emergency clinic and not at home.

“I simply turn the point to something different,” he added.

Treatment hole

As indicated by the review led by the National Society for Childhood Cancer Kidscan, which studied almost 3000 youngsters expressed that around 50% of kids with malignant growth in India stay undiscovered and incapable to get to therapy.

“The people who do get to mind frequently get it at a high-level phase of the infection when there is a lower likelihood for a fix,” the review focuses.

“Burning through a solitary second of time can demonstrate exorbitant in such infections. The more suddenly the treatment starts, the more possibilities of recuperation,” Dr. Ahmad said.

In any case, he added, a large number of the patients come to clinics or visit a specialist when a great deal of harm has been done, or the illnesses have advanced, developed, and spread to different parts.

According to the Kidsscan study, a huge postponement happens at the finding stage.

All things considered, it requires a family 37 days to explore the essential and auxiliary medical care framework prior to arriving at a particular clinic and getting a conclusion. This figure lies somewhere around 0 and 1,448 days, according to the review.

Inappropriate determination

Helpless analysis and generally modest medical services places are an obstacle that should be killed, specialists say.

“We really want better medical services habitats at an essential level so analysis and appropriate therapy can profit at the underlying level of the destructive stage,” Dr. Javvid Muzamil, a clinical oncologist, told Anadolu Agency.

He added that we see patients when the infection has advanced generally. This can be limited if we have better Healthcare offices at the essential level.

Bilal, who hails from the Kupwara region of Kashmir, additionally repeated that there is a requirement for better medical services offices.

“We need to travel the entire day prior to arriving at a city medical clinic for therapy. If God preclude there is serious patient, he will bite the dust coming,”

“I don’t need that destiny for my child,” he said.

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